In March, it will be fourteen years since my son, Adam, died. He died March 15th, 2004.
I recalled yesterday something my daddy said, a few years before he died in 2007. It was a statement he made out of the blue when I was driving him to have lunch together. He said, “We did good, didn’t we?” I answered, “What do you mean?” He replied, “We did good by Adam.” I said, “Oh yes! Never worry about that because we did our very best.” That comforted him. He was devoted, as we all were, to Adam. Adam had the best loving care all of his life.
When I got pregnant at fifteen, if my parents were in shock or upset, they didn’t let on. They immediately came to my side and supported me. I wanted to have an abortion. This did trouble them, as Catholics. But, my mom looked into it, calling the clinic in Baton Rouge. She also spoke with a priest she was close to who told her, when she said that I was suicidal about it all, that God would forgive us and to save my life. Hard to imagine, right? That conversation did take place.
Some other things happened that I won’t say, but ultimately I decided to keep my baby. All the stress in me dissipated after that and life was relatively peaceful at home. My daddy brought me breakfast in bed daily to make sure I was eating healthy. My parents owned a small business and they built a room that served as a nursery and small kitchen so that they could care for my baby while I was at school. The tranquility disappeared when my baby was born at 26 weeks, weighing only two pounds, two and a half ounces.
For four months after Adam was born, we lived in crisis. He had so many close calls, life and death ones. Calls from the Neonatal Intensive Care Unit in the wee hours telling us to come to the hospital because Adam was blue, not breathing, and his heart had stopped were frequent. Trauma after trauma after trauma.
Adam came home in December of 1984. He was born in August. I had expected a healthy baby and Adam wasn’t. I had only just turned 16 when he came home. I was shell-shocked with all of the traumas we had gone through with Adam. I rebelled and acted out with anger. I struggled to accept Adam the way he was when he didn’t hit the development marks a child of his age should. Slowly we were learning of his disability. He never walked or talked. He couldn’t hold his head up. His developmental age was determined by doctors as two months old.
It was my now husband, Dean, who helped me come to acceptance of my child in deeper ways. While my parents were primary caretakers, I grew able to take on more roles related to his care. It was Dean’s gentle manner with Adam and special care he showed him that inspired me to open up more. I had been shut down because of the trauma of the NICU, the development of seizures, and Adam’s lack of development. All of it frighted me. I was afraid to love Adam because I was afraid to lose him. I believed it was all my fault. It wasn’t no matter what the gossipers said. Of course, I loved my baby from his moment of birth until his awful death in 2004.
My parents never faulted me for the reticence I felt. My mother only gently encouraged me to open my heart. In the nineteen years we had with Adam, I count all of the blessings. He could have died the night he was born. He could have died many times after that. I was graced with time to learn to fully mother him. I was graced with the strength to be able to be his guardian in all care given to him. I was able to be the mother he needed me to be. I have the memory of his laughter. That is a gift. Nineteen years was a gift. Adam was a gift. His life was longer than any of us could have expected, considering his disabilities and health issues.
There’s so much more to Adam’s story. We were the lucky ones to know and love him. Here are two poems I wrote for him, one while he was still alive, and one just a week or so after his death from septicemia due to recurring bouts of pneumonia.
Both are collected in Eating the Heart First (press 53, 2012).